UNDERSTANDING CANCER
Cancer is not a single disease but a broad category of diseases with many different types, each requiring unique treatment approaches. If you want to learn more about a specific type of cancer, several reliable sources provide detailed, up-to-date information on symptoms, diagnosis, treatment options, and ongoing research. Trusted websites like the National Cancer Institute (NCI) (cancer.gov/types), the American Cancer Society (ACS) (cancer.org/cancer/types), and Cancer Research UK (cancerresearchuk.org/about-cancer/type) offer comprehensive resources tailored to different cancer types. These platforms can help you better understand your diagnosis, explore treatment options, and access support networks. Always consult with your medical team for guidance specific to your condition.
QUESTIONS TO ASK YOUR DOCTOR AND MEDICAL TEAM THROUGHOUT YOUR CANCER JOURNEY
- What type of cancer have I been diagnosed with?
- What stage and grade is my cancer, and what does that mean?
- Is my cancer slow-growing or aggressive?
- Has it spread to other parts of my body?
- Can the cancer be cured or controlled?
- What is my cancer's molecular profile or subtype?
- Should I preserve tissue samples for future testing?
- What caused my cancer, or do we know the cause?
- Do you have informational materials about my cancer and its treatment?
- Are there trustworthy websites or patient resources you recommend?
- How urgent is it to begin treatment? Do I have time to seek a second opinion?
- Should my family members be tested (genetic link)?
- Do I need to get my will or power of attorney sorted?
- What tests do I need? What will each test determine?
- Who will perform the tests, and where?
- How should I prepare for these tests (fasting, stopping medication, etc.)?
- Will the tests be painful or have side effects?
- How long will each test take, and when will I receive the results?
- How will you notify me of the results?
- Are there possible risks or complications from the tests?
- Will I need additional imaging (CT, MRI, PET scan, ultrasound) or biopsies?
For initial biopsy and diagnostic reports
- Can you explain my pathology report in simple, non-technical language?
- What does my pathology report tell us about my type of cancer (stage, grade, biomarkers)?
- Were any genetic or molecular tests done on my tumor? If so, what do they mean for treatment?
- How accurate are these test results, and do they ever need repeating?
- Should my pathology slides be reviewed for a second opinion?
For post-op reports and scans
- What did the pathology of the tissue removed during surgery show?
- Were the surgical margins clear of cancer cells?
- Did the cancer spread to any lymph nodes? If so, how many?
- Do I need further treatment based on the pathology results?
- How will these results change or confirm my treatment plan?
- How soon will I get the results, and how will they be communicated to me?
- What follow-up scans or blood tests (e.g. tumor markers) will I need?
- What treatment options are available to me, and what does each involve?
- What are the reasons for and against each treatment option?
- How does my age, overall health, and other conditions affect treatment choices
- What happens if I want to stop treatment?
- Will I need surgery, chemotherapy, radiation, immunotherapy, targeted therapy, or a combination?
- What is the treatment protocol or regimen name?
- Does my cancer have any specific features (biomarkers, genetic mutations) that affect treatment choices?
- What are the benefits and risks of each treatment option?
- Will choosing one treatment limit my options later?
- How long will treatment last, and how often will I need appointments?
- Will I need to stay in the hospital? If so, for how long?
- Can my treatments be scheduled around my job or other obligations?
- How will we know if the treatment is working?
- If my treatment isn’t effective, what happens next?
- How will treatment affect my daily life (work, social, exercise)?
- Are there clinical trials available that may be suitable for me?
- How do I get a second opinion, and will it delay my treatment?
- What are the most common short-term side effects?
- What are possible long-term side effects?
- What signs or symptoms should I report to you straight away?
- How can I manage side effects such as nausea, fatigue, or appetite changes?
- Are there complementary or alternative therapies that could safely support my treatment?
- How will treatment affect my mental health and mood?
- Should I inform my dentist, eye doctor, or other specialists about my treatment?
- What vaccinations should I avoid during treatment?
- How will treatment affect my fertility or menstrual cycle?
- Is it safe to be intimate with my partner during treatment?
- Will treatment trigger menopause-like symptoms? If so, how can I manage them?
- Should I follow a special diet or exercise plan?
- Can I continue taking my current medications or supplements?
- Are there activities, foods, or environments I should avoid?
- What type of chemotherapy will I receive?
- Will I need a port or central line?
- What medications will I need before chemotherapy (e.g., anti-nausea)?
- How will chemotherapy affect my immune system?
- Am I at risk of infections, and how can I reduce this risk?
- How long will each session take, and what should I bring?
- Can I drive myself to and from sessions?
- What should I do if I feel unwell after a session? Who do I contact?
- What should I do if I miss or need to reschedule treatment?
- Will I lose my hair? If so, when?
- Do I have the option of hair preservation measures such as cold caps?
- What kind of radiation therapy will I receive?
- How can radiation therapy help in my case?
- How many weeks will my course of radiation last?
- How many days per week will I need to come in, and how long does each session take?
- What side effects should I expect during radiation?
- Will these side effects go away after treatment is finished?
- What long-term side effects might I experience after radiation therapy?
- What can I do to manage radiation side effects? What support will you provide?
- Are there foods, supplements, or products I should avoid during radiation?
- How will we know if the radiation treatment is working?
- Will radiation be combined with other treatments (chemotherapy, immunotherapy, surgery)? If so, how will that affect me?
- Are there risks of radiation to nearby organs (heart, lungs, fertility, etc.)?
- Will I be radioactive afterwards - is it safe to be around my children or partner?
- Can I work, exercise, or maintain daily routines during radiation?
- Why do I need surgery, and what is the goal of the procedure?
- What type of surgery will I have, and how is it performed?
- How soon should the surgery take place?
- What are the risks and benefits of this surgery?
- Will I need reconstructive surgery, and when?
- What are the cosmetic outcomes I can expect?
- Are there alternative or less invasive options to surgery?
- What should I do to prepare for surgery (tests, diet, medications)?
- What kind of anesthesia will be used (general, local, regional)?
- How long will the surgery take?
- How much of the tumor/tissue will you remove?
- Will I need drains, catheters, or a port after surgery?
- How long will I need to stay in the hospital?
- What can I expect during recovery in the hospital?
- How much pain should I expect afterwards, and how will it be managed?
- How long will it take to recover fully at home?
- What symptoms or complications should I watch for after surgery?
- What follow-up care will I need after surgery?
- Can I drive myself home?
- Do I need special clothing, pillows, or support garments after surgery?
- What diet should I follow after surgery?
- Will I need other treatments (chemotherapy, radiation, targeted therapy) after surgery?
- How will surgery affect my daily activities, including work, exercise, and intimacy?
- How experienced are you/this hospital with this type of surgery?
- What is the expected success rate or outcome for this procedure?
- Why do you recommend immunotherapy for me?
- Will immunotherapy be my only treatment, or combined with others (chemo, radiation, targeted therapy)?
- How and where will I receive immunotherapy (hospital, clinic, infusion center)?
- How long will each session last, and how often will I need treatment?
- How long will the overall course of immunotherapy last?
- What tests or monitoring will I need during immunotherapy?
- What side effects are common with immunotherapy?
- Are there rare or serious side effects I should know about?
- How will these side effects be managed, and are they reversible?
- How will immunotherapy affect my daily life (work, exercise, social activities)?
- When and how will we know if immunotherapy is working?
- What follow-up care will I need after immunotherapy?
- Are there long-term risks from immunotherapy?
- How much will immunotherapy cost, and will insurance cover it?
- Why do you recommend targeted therapy for me?
- What mutation, biomarker, or feature of my cancer makes me eligible?
- What type of targeted therapy will I be receiving?
- Will targeted therapy be used alone or combined with another treatment?
- How often will I take this therapy, and for how long?
- How will the therapy be administered (pill, infusion, injection)?
- What tests or scans will I need before starting?
- What monitoring (lab work, imaging) will I need during treatment?
- What side effects are common with targeted therapy?
- What can I do to manage those side effects?
- Are there any long-term health risks from targeted therapy?
- How will targeted therapy affect my daily life (work, exercise, routine)?
- What will follow-up care look like after targeted therapy?
- How much will targeted therapy cost, and is it covered by insurance?
- Who are the members of my care team, and what are their roles?
- Who do I contact if I have questions between appointments?
- Who do I contact in an emergency or outside office hours?
- Are mental health or counseling services available to help me cope?
- Are there support groups or patient communities I can join?
- What resources are available for my family and caregivers?
- How will treatment affect my child's growth and development?
- What adjustments might my child need at school during treatment?
- How do we explain the diagnosis and treatment to my child?
- What pediatric specialists should be on the care team?
- How will treatment affect my child's social development and friendships?
- How might treatment affect my fertility long-term?
- What fertility preservation options are available before treatment?
- What are safe birth control options during treatment?
- What signs of hormonal changes or menopause should I expect?
- Are there safe treatments for menopause-like symptoms?
- Will my insurance cover my treatments?
- Will I have out-of-pocket costs, and how much?
- Can I get a written, detailed estimate?
- Are there equally effective but less expensive treatment options?
- How and when will I be billed?
- How do I appeal insurance denials?
- What documentation do I need for disability claims?
- Who can I speak to about financial assistance?
- Are there programs or grants available to help with costs?
- What is the goal of my treatment (curative, control, palliative)?
- What are the survival rates for my type and stage of cancer?
- What portion of patients with my type of cancer live five years or more?
- What does “remission” mean in my case?
- What are the chances my cancer may return?
- Are there any clinical trials suitable for me?
- What does joining the trial mean for my everyday routine?
- What are the risks and benefits of enrolling?
- Do I have the right to withdraw at any time?
POST TREATMENT
- What should I expect physically and emotionally after treatment ends?
- Are there medications I’ll need to continue? For how long?
- What side effects might persist or appear later?
- What are the chances of recurrence, and how can I reduce my risk?
- What follow-up care and monitoring will I need?
- What symptoms or signs should I watch for that could mean my cancer has come back?
- Who will oversee my care after treatment is finished?
- How can I manage fear or anxiety about recurrence?
- What support services are available for me and my family after treatment?
- Will my cancer history affect health insurance or employment?
- When can I return to work, and will there be restrictions on what job duties I can do when I return?
- How can I best prepare for life after treatment?
- What lifestyle changes can improve my long-term health?
- When can I safely receive vaccines again?
- What palliative care options are available to manage symptoms?
- How do we transition from curative to comfort care if needed?
- What decisions about my care should I put in writing?
- How can we ensure my comfort and quality of life?
- What hospice services are available if needed?
- How can we involve my family in care decisions?
- Do I need to get my will or power of attorney sorted?